WHAT IS MPS 2?
Hunter syndrome is a rare genetic disorder that occurs when an enzyme your body needs is either missing or doesn’t work properly.
Because the body doesn’t have enough of the enzyme to break down certain complex molecules, the molecules build up in harmful amounts in certain cells and tissues. The buildup that occurs in Hunter syndrome eventually causes permanent, progressive damage affecting appearance, mental development, organ function and physical abilities.
Hunter syndrome appears in children as young as 18 months. It nearly always occurs in males.
There’s no cure for Hunter syndrome. Treatment of Hunter syndrome involves management of symptoms and complications.
People Affected Worldwide With MPS2
People In the US with MPS2
Average Cost Per Week Per Child For Treatment
We wanted to thank each and every one of you that came out to Stevi B's today to show their support for the boys! We are so grateful for all of our wonderful friends and family. A special thank you to the Treasure Coast LEO Wives for putting this event together....read more
My sister and brother in law recently received some very difficult news. Both of their sons, my nephews, Cadence & Asher, were diagnosed with Hunter Syndrome (MPS2). The gravity of this particular situation is so sacred and personal that I worry any attempt...read more