Most boys with Hunter Syndrome don’t live beyond 15 yrs old. Help our babies grow up! Here’s an easy way you can help: use the hashtag ‪#‎WhenIGrowUp‬ & tell us with a photo what you want to be when you grow up! has launched a very special video with the goal of raising funds for gene therapy. Please visit the site to register… it only takes a few seconds!


The Adams children completed the challenge already — help us add to the collection & we’ll share and tweet them with the hashtag! #mps2


Cadence Asher Elenia Adams Project Alive

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