When I Grow Up… #ProjectAlive

When I Grow Up… #ProjectAlive

Most boys with ‪Hunter Syndrome don’t live beyond 15 yrs old. Help our babies grow up! Here’s an easy way you can help: use the hashtag ‪#‎WhenIGrowUp‬ & tell us with a photo what you want to be when you grow up! ProjectAlive.org has launched a very special...
Iron Sharpens Iron Event | Sponsors Wanted

Iron Sharpens Iron Event | Sponsors Wanted

SPONSORS WANTED For “Iron Sharpens Iron” Event to Benefit Cadence and Asher Adams! On Saturday, June 20th, 2015 we are putting on a MASSIVE Event to benefit the boys! It is being sponsored by Southern Eagle Distributing and co-sponsored by V.E.M.A., Port...

We Have Good News

WE HAVE GOOD NEWS….Jackson Memorial Hospital has approved the boys’ treatment and are working on training the staff on Elaprase infusions (happening this Tuesday) and ordering the enzyme and scheduling the boys’ infusions! Pray we get in this coming...

Thanks For Coming Out To Stevi B’s Today!

We wanted to thank each and every one of you that came out to Stevi B’s today to show their support for the boys! We are so grateful for all of our wonderful friends and family. A special thank you to the Treasure Coast LEO Wives for putting this event...

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