Hunter syndrome is a rare genetic disorder that occurs when an enzyme your body needs is either missing or doesn’t work properly.

Because the body doesn’t have enough of the enzyme to break down certain complex molecules, the molecules build up in harmful amounts in certain cells and tissues. The buildup that occurs in Hunter syndrome eventually causes permanent, progressive damage affecting appearance, mental development, organ function and physical abilities.

Hunter syndrome appears in children as young as 18 months. It nearly always occurs in males.

There’s no cure for Hunter syndrome. Treatment of Hunter syndrome involves management of symptoms and complications.


People Affected Worldwide With MPS2

People In the US with MPS2

Average Cost Per Week Per Child For Treatment

Just Yesterday….

Just Yesterday...November 12, 2015....2 days after Daddy's Marine Corps. Birthday. As a United States Marine Corps Veteran he will always share this with you but you will only share this with him in spirit.... It seems like just yesterday I held you in my arms. You...

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When I Grow Up… #ProjectAlive

Most boys with ‪Hunter Syndrome don’t live beyond 15 yrs old. Help our babies grow up! Here’s an easy way you can help: use the hashtag ‪#‎WhenIGrowUp‬ & tell us with a photo what you want to be when you grow up!

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Iron Sharpens Iron Event | Sponsors Wanted

SPONSORS WANTED For “Iron Sharpens Iron” Event to Benefit Cadence and Asher Adams! 100% of the proceeds are going to the boys.
On Saturday, June 20th, 2015 we are putting on a MASSIVE Event to benefit the boys! It is being sponsored by Southern Eagle Distributing and co-sponsored by Port St. Lucie Fraternal Order of Police, Treasure Coast L.E.O. Wives, and V.E.M.A.

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We Have Good News

WE HAVE GOOD NEWS....Jackson Memorial Hospital has approved the boys' treatment and are working on training the staff on Elaprase infusions (happening this Tuesday) and ordering the enzyme and scheduling the boys' infusions! Pray we...

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